AngelWolf13
Old Hand
Reged: 07/07/04
Posts: 447
Loc: w/ my '91 EG-4 in SoCal....
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this is an e-mail i got today from the national foundation for the treatment of pain, just in case anyone is interested....
Quote:
The National Foundation for the Treatment of Pain has been in existence for over 6 years, and in that time we have helped 1000''s of chronic pain patients, pain physicians and the friends and families of those who suffer on a daily basis. Our growth and progress has been grassroots, steady and we have established ourselves as the leading foundation advocating for pain patients in America. We have become known throughout the nation as a leading authority on pain treatment, and have helped and supported those who believe in our cause.
Everything that we have been able to accomplish has been done with limited funds, lot''s of love and the extreme dedication of our members, staff and sponsors. We have big initiatives planned for the next 12 months. We want to take our Pain Awareness program to a National level, and are negotiating with sponsors and educational television to produce a documentary ! about the state of pain treatment in the United States. We are launching a Pain Physicians Practice Insurance program that would protect doctors from harassment, and protect their ability to practice and provide pain care for the millions of patients who suffer chronic pain. We are sponsoring a survey to assess the state of pain care for victims of spinal cord injury as well as those who suffer chronic intractable pain.
Now, we need your help to achieve our goals. This message is to enlist your help and support to carry our mission further. Charitable funding has been very limited for our organization in the last year, so we need your help immediately! We are presently involved in a membership drive to increase our income and abilities to help our members. If you are a member, please consider making a special contribution to our membership fund, or renew your membership if it has been more than 1 year since you joined us. If you! have friends, family or physicians who are sympathetic to our cause, ask them to join, or make a contribution in their name. Please make a tax deductible contribution of at least $25, or more if you can afford it. We really need your help as long as their are still millions of patients in our country who do not have adequate treatment for their daily battle with chronic pain. Please join, renew, or make a generous contribution today: go to http://www.paincare.org/membership/index.html
or you can mail a check to:
Membership Drive
National Foundation For The Treatment Of Pain
1138 Yale Street
Houston, TX 77008
Thank you for your support!
Mark Gordon
Communications Director
The National Foundation for the Treatment of Pain
Please go to our website:
http://www.paincare.org/membership/index.html
and become a member so that we can help you!!
i don't work for these people. i don't know if i'm allowed to post this, but i think this is the correct forum.
cheers, c.(angel)
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"Some mornings, it's just not worth chewing through the leather straps."
Emo Philips.
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Sweetz
Diamond Mind
Reged: 05/11/02
Posts: 768
Loc: Texas!
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Yeah, it's the right forum, and I just happen to belong! I would highly recommend everyone join this organization. I believe some of the funds to go help docs who get busted for doing their PM job and have their assets frozen, etc. Not too sure about that though.
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"If you choose not to decide you still have made a choice."
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Sweetz
Diamond Mind
Reged: 05/11/02
Posts: 768
Loc: Texas!
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I can't believe the non-response to this thread. It's sad. I'm sure others belong to other pain groups though, so that explains some of it. I joined last year when I had the $$$ to do so. PM docs need all the help we can give them!
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"If you choose not to decide you still have made a choice."
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ellen1
Enthusiast
Reged: 07/03/02
Posts: 238
Loc: N. Calif.
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I just sent the site address to a relative who's in constant pain. I'm sure others will also.
Thanks for the post.
Ellen
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AngelWolf13
Old Hand
Reged: 07/07/04
Posts: 447
Loc: w/ my '91 EG-4 in SoCal....
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sad, but true. i wholeheartedly agree with you. if there was a way i could find a kind doctor or a pm clinic around here all the money i save could and would be put to good use in these organizations. it's too bad that people who are fortunate enough to receive effective care forget that there are a lot of us who get little more than "there is nothing we can do, there is no cure, you just have to learn to live with it, have you tried accupuncture or yoga (full knowing that no insurance that i am aware of covers these)"
honestly, i get so jealous of posters who claim things like, "well, my doctor only lets me have 3 norcos a day". only??? try 1 and a half t3 per day max and sometimes he doesn't refill right away because they are a narcotic. oh, but he was very generous when prescribing me celebrex, which i am sure is going to be pulled from the market after the vioxx debacle. after the second day it never touched my pain, but i was prescribed enough of them to slowly kill me. my physical therapist told me once that if i am in enough pain to be distracted from my exercises (which is like always) to take my pain meds before i go in. little does she realize that i don't even get enough to give me a little relief for a few hours which i always save for the evenings. i can't afford to take them during the day.
oh, sweetz, i don't mean to go on and on like this, but it's building up it's like opening up the floodgates when i start to talk about it. i do apologize. i am lucky to be getting my psych meds and for that i am thankful. i have to try harder to count my blessings, i suppose.... but, i do agree with you. i hope you are receiving adequate care, dear, i really do. pray for me. please.
thanks for posting, hon, i wish more would too.....
love, angel
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"Some mornings, it's just not worth chewing through the leather straps."
Emo Philips.
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AngelWolf13
Old Hand
Reged: 07/07/04
Posts: 447
Loc: w/ my '91 EG-4 in SoCal....
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hi ellen,
i didn't see you sneak in there before me while i was writing my post.  thank you. the best of wishes to you and your relative. hopefully, one day everyone will be pain-free or at least pain-tolerated. i wish to see this in my lifetime.
cheers, angel
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"Some mornings, it's just not worth chewing through the leather straps."
Emo Philips.
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Sweetz
Diamond Mind
Reged: 05/11/02
Posts: 768
Loc: Texas!
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Oh, hon, don't ever apologize for anything, especially venting about pain issues. I've been through enough and enough ERs and I may be settling into my 'routine' now. I just have to accept that there will always be a certain amount of pain in my life, but at least I can have some control over when it occurs. Worst thing is running out of meds too early. It's hard to tell with migraines, may be a good month, might suck. sometimes I just don't have the energy to go through the pain and indulge myself in pure pain relief. Feel free to PM me any time hon! We're in this together!!!
thanks to the poster who responded. I already forgot their name, lol. blonde moment.
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"If you choose not to decide you still have made a choice."
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AngelWolf13
Old Hand
Reged: 07/07/04
Posts: 447
Loc: w/ my '91 EG-4 in SoCal....
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oh sweetz, your name fits you perfectly!  thank you for letting me vent. i can live with a certain amount of pain as long as i am able to get a certain amount or relief for at least part of the day. it's so weird that i have absolutely no problems getting dexedrine, every psych i see encourages me not to forget to take them daily, and dexedrine is a sch.II! but getting sch.III narcotics for me is like pulling teeth! to be honest i'd rather have something that relieves some of my pain much more than something that keeps me calm and focused. sweetie, i just might take you up on that pm. you're a wonderful, thoughtful and caring human being and i'm glad you are on my side! i am sorry it takes me so long sometimes to answer posts or pms, i feel bad about that, but sometimes i just can't sit in front of my computer long enough to finish a letter or post and i like to put some thought into them.
to all posters, take care, and wishing you all happy and pain-free days!
cheers, c.(angel)
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"Some mornings, it's just not worth chewing through the leather straps."
Emo Philips.
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stevesmith
Reged: 10/01/04
Posts: 431
Loc: Southern
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I am interested and going to review the site and info tonight after my workout. I also cant believe there isnt mroe response to this post THANKYOU FOR POSTING THIS ANGELWOLF
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PPL don't argue over ideas or possible solutions, but instead argue to assert their egos and release frustration. Once U realize this, U will neither argue nor take arguments seriously
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blissmiss
Member
Reged: 08/10/04
Posts: 124
Loc: Connecticut, via Illinois, Mis...
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For us relatively new folks, keeping this from being buried in the basement will help. I am interested, and will look further into it. Thanks for helping some of us, find and keep ways, to help ourselves.
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Do you not see how necessary a world of pains and troubles is to school an intelligence and make it a soul?
John Keats 1795-1821, British Poet
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Sweetz
Diamond Mind
Reged: 05/11/02
Posts: 768
Loc: Texas!
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Feel free anytime you're up to it hon. I spend most of my time on the vip side, but check in here for PMs often. We all know how much pain sucks. It affects you're whole being. there's no part of my personality, life, etc. that isn't affected by pain at one time or another. My family has learned to live with it over the years, and has actually become relatively numb to it. Which hurts emotionally sometimes. Just because I throw up with headaches all the time, doesn't mean it's not agonizing each time. Feel free to vent all you want or need to. thank you so much for the kind words......I'm finally at a loss for words, lol.
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"If you choose not to decide you still have made a choice."
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