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I just read your post, redhill, along with the rest of this thread. I really empathize you - I have tears in my eyes after reading how terribly tough it is for you. I've been (and still am - but now nowhere near as bad) at a similar position to you, but at the same time quite different. I haven't had all of your experiences (though I know the problems with doctors etc... very well - the LOOK, the underdosing, the lack of compassion, the judgementalism, the ignorance etc...). But I KNOW that the emotions you are suffering are so very similar to mine, and that is why I believe that anyone who is in really bad pain (whatever kind) can relate so closely. I've had a LOT of support and good advice from other sufferers (of many kinds) and 3 of the best pieces are
1) 'This too will pass' - sounds like a bit of a cliche but true nevertheless.
2) Try and just keep living life one day (or hour, or minute or even second!) at a time, then you just have to only get through that next 24 hours, hour, minute or second. That way I find I don't have the often horrific thought that whatever is bad at the moment is just going to go on and on, and that helps keep out the despair and fear. I just have to hang on for that next day or hour or minute or second. It IS easier said than done but with practice and encouragement I find it does help a lot.
3) this I have found the best - prayer! I didn't believe there could be a God (one big objection was why would He or Her or Whatever allow such suffering!!) but I got so very, very desperate - I mean right to the very, very edge (I just KNEW my time had come) - and I suddenly realised I had nothing to lose by asking Him or Her or Whatever for some help, 'cause NO ONE else could or would help. It was a very big surprise when I did get the help I needed. So I carried on praying and I carry on getting help - not always what I want, but in perspective ALWAYS what I need.
I wish you the very, very best redhill - remember that you are not alone in this.
GREAT NEWS: $30 off for VIP's. Please use code available inside VIP area. Bi-wise Pharmacy is offering Youronlinedoctor Patients a $20 discount off their first prescription and TDI pharmacy is offering $10 priority overnight shipping for Youronlinedoctor patients also!!
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