Flavia
Journeyman
Reged: 01/29/03
Posts: 65
Loc: Baja Oklahoma
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I have heard from many of you, strugging with the difficulties of varying illnesses. What outcome do you want?
I want to be able to have a few hours painfree so that I can do my work, or go shopping, or ride in the car, or sit still at the movies. I would like to have a dinner on the deck for a few people, but I can't stand that long.
What do you have to settle for? I break up housework into 3 sessions. I sit a lot. I don't go anywhere in the car. I don't take long trips. I read some, work on the computer, take care of my cats, and look out the window. My husband is disappointed in me. No more long involved meals - just quick-cheap-easy for us.
Lowering my standards has been painful because I was such a perfectionist. Tell me, what more can I attain?
Flavia
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In this day and age, you need a crutch to get through life. If you don't, you are dead, in a
coma or seriously mentally impaired.
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Pickledoo
Veteran
Reged: 09/20/02
Posts: 574
Loc: New England
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Hi Flavia,
What you want is what most of us here want. Home, family, rest, activity, fun, all normal things to most people. Doesn't seem like much to ask huh? I was touched by your post and it truely hit a nerve with me. I have a husband and a beautiful daughter. How sad that I must wait 1/2 hour every morning waiting for my meds to kick in before I can even bend down to hug and kiss her. My hubby so far has been supportive but I know he worries about me and the fact that I am in so much pain most of the time and wishes I didn't have to take medication so often. The stories folks share here are heartbreaking. We are here for you. Just one day, pain or anxiety or depression free is what most of us wish for.
If you ever need someone to vent to, feel free to pm me. I'm not here every day but will answer as soon as I can.
Blessed be my friend.....
Pickledoo
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tray1
Enthusiast
Reged: 11/22/03
Posts: 241
Loc: US
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What a subject!
What I want more then anything is my old life back, I know that is unrealistic so a realistic goal is to be at a level 4 on the scale and never above......I could live with that. I also wish that everyone here would obtain realistic pain relif, there are way too many of us that suffer daily! Its too bad that we have all become pawns in the big scheme of the USA's economy, the DEA needs to show success so we all suffer the consequences, us the easy targets!
I wish the DEA would go find someone its on size to pick on, the real enemy, the huge drug cartels that are responsible for killing so many of our Countries Youth.
We all deserve adequate relief and someday I hope we all get it!
Tray
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purppoptart
Journeyman
Reged: 04/28/04
Posts: 84
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Agreed - before my arthritis, I was very active and fit. Since I was unable to move around a lot without pain, I gained weight and became miserable. One pill a day is all it takes for me to have my life back - I'm able to go out for the day pain-free - there's no pricetag on that! I'm 46 and not ready to throw in the towel, I've got more energy than I had at 30, my ailments won't go away, but at least I don't have to dwell on them. I wish everyone a pain-free day!
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......and his hair was.....PERFECT!!
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henry1
Board Addict
Reged: 10/08/03
Posts: 322
Loc: North Central USA
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A few things I want... I would like to work in my garden, and when I get finished my knees and back would feel good like they did years ago. I would love to go back to a time when smoking a cigarette was okay, when I could put real butter on my toast and not worry about it. I would love to use all the salt I want, and nobody would be telling me how bad it was. I would love to throw a football with the kids in the neighborhood, and not have to ice my shoulder a few hours later. That would be a start...
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treading the backward path...
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Sweetz
Diamond Mind
Reged: 05/11/02
Posts: 896
Loc: Texas!
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I would love to be able to make plans and keep them. Often we plan on doing something and then a nasty migraine comes on and it's to the bed for me. I would love not to have to "tough it out" sometimes just so I don't inconvenience my family to take me to the Er or urgent care. I would like to never throw up again, except when I'm sick. I would like to get a little sympathy and help and caring when I do have a horrible migraine. Instead, everyone around here is so used to it, no one even notices when I'm dry heaving in the bathroom. No one offers a cool towel, or water, or to get my supp., nothing. So, I just quietly disappear to the bedroom, like a "good girl", like I'm some bad secret that no one wants to deal with. I shouldn't say 'no one', my 14 yr old will offer help sometimes if she knows I'm hurting. I just feel like some dirty little secret to be hidden away. They're all used to it, so I guess maybe it's not real any more to them. But, it's certainly REAL to me! I think they've lost compassion in that sense and it makes me sad.
Thanks for letting me vent Flavia! How the hell are you girl??
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Flavia
Journeyman
Reged: 01/29/03
Posts: 65
Loc: Baja Oklahoma
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Oh, I'm OK. I was wondering if that doctor-friend of ours has moved to her new office. I haven't had to go, but if I do, I'll be going by myself...and that part of town is very strange to me. I need to know where I am going. Flavia
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In this day and age, you need a crutch to get through life. If you don't, you are dead, in a
coma or seriously mentally impaired.
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Sky_Queen
Fly Girl
Reged: 12/03/02
Posts: 2006
Loc: Texas
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Well maybe the three of us girls can take a road trip and go together? I'll drive.........
Flavia, nice post, hit me to the core. I'm so tired, so sick and tired.....I would give everything I own to have my life back before I got fibro, auto immune disorder, whatever I have. Just to be normal, which used to be so boring. Oh how sweet that boring life back would be, just to do normal, daily tasks and not be in agony - nothing fancy, just the simple things in life that have become MONUMENTAL now.........
Good post!
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Flavia
Journeyman
Reged: 01/29/03
Posts: 65
Loc: Baja Oklahoma
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I'm game. The three musketeers venture out to PMD Land.
PM me your location. I'm pretty far from Sweetz...about 30 miles. (Sweetz and I have already corresponded about locations). We could meet somewhere. How about that?
God - if you would drive, that's wonderful. Dr. in Irving? Flavia
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In this day and age, you need a crutch to get through life. If you don't, you are dead, in a
coma or seriously mentally impaired.
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Sky_Queen
Fly Girl
Reged: 12/03/02
Posts: 2006
Loc: Texas
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Yep - that's it! I'm way far Northeast of the both of you but I like road trips and have plenty of room. I'll send ya a PM....................
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