 |
sacred
Stranger
Reged: 01/07/04
Posts: 10
Loc: Ohio
|
|
This is my first post here,,,and i am trying to get information on MEDS..i suffer from Adnomyosis and i can not seem to find a Dr who will take this serious..They are all serious in confining me to a bed and authorizing limited mobility..Even in suggesting a brace to hold up my uterus or worse,,a hysterectomy..I have 3 kids and I am only 30. I would like to find another method of "living"I do usually take Vicodin for the discomfort..Here lately,my Dr says try to tough it out..How exactly do you "tough it out"when a part of your body is falling out...Maybe i did not mention that..The last few visits i had,I was told that my Uterus is inverted and dropping ..They did tell me in the same visit that if i did not do something soon that i would vaginally deliver my Uterus..Has anyone ever heard of this before?Anyhow,i am trying to get any and all advice and information i can on getting the pain meds i need until i can find a kind soul in the medical field who really cares that i am a person.. 
--------------------
Behaved women never make history.....
|
gottadoit
Enthusiast
Reged: 10/21/03
Posts: 269
|
|
I am so sorry to hear about your condition - what a nightmare. This is very strange though - I am not a doctor - but how is it possible to "deliver your uterus"?? The uterus is not a free floating organ so how can this happen? What a horrible situation! Forgive me if this is too personal, but why wouldn't you consider a hysterectomy? You wrote that you have three children and I'm guessing that with your condition the likelihood of you sustaining another pregnancy is slim to none, so why not just do it and end this nightmare? I know the idea of surgery is not pleasant, but what you are going thru seems horric! If they only do a partial and leave your tubes and ovaries it won't send you into premature menopause or anything like that. How terrible.
And ofcourse,to make it even worse, I see that you are having the same problem with your wonderful, compassionate (sarcasm) doctor that most of us have! Why won't he manage your pain? Obviously your condition is legitimate!! This makes me so angry!
You didn't say how often you need to take the medication. If it's more than 4 a day I suggest you look into Dr. Watson or Madison Pain Clinic. They both will prescribe more than the typical norco 10/325, 90-120 pills per month. They also both compound their meds and will offer the hydro in up to 15mg strength with only 100mg of tylenol. This is MUCH better for your organs. However, both of these docs require bloodwork, a portamedic exam and records. If you can afford the intial fees and don't mind the requirements, these are probably your best bet over the long term (both also prescribe 6 months of refills). Dr. W. is much less expensive than MPC.
If the 90-120 pills is enough for them month then fedexmeds, southwestern, easternvally and youronlinedoctor are all very good and only require records and not the other stuff.
I'm sure that there are other db members that can recommend other sites. The four that I just listed seem to have consistently good feedback here.
Good luck. I hope that things work out for you.
|
sacred
Stranger
Reged: 01/07/04
Posts: 10
Loc: Ohio
|
|
I do not know how i could possibly deliver my Uterus..It sounds nuts to me also..I just take what they say i guess..I have seen other Dr.'s who just refer me out..No one wants to touch me...I only take the meds when the pain is too much to handle..And yes,the chances of having another baby are not there for me..I had to have a tubal after my 3rd baby..I started labor at 26 weeks and was told it was because the baby was not attatched to the uterine wall...although with complete bedrest and labor meds i carried her full term..They say i should not have gotten pregnant..I was supposed to be infertile..I have no idea what curse was placed on my body,,but it has been a cruel joke from day one...If you have any more info,,please respond..
--------------------
Behaved women never make history.....
|
gottadoit
Enthusiast
Reged: 10/21/03
Posts: 269
|
|
Hi Sacred, It's 3am here on the east coast and way past my bedtime, I'll send you a pm tomorrow. Please feel free to pm me if you want.
Good night (morning) everyone!
|
Miss_EttiKit
Journeyman
Reged: 11/24/03
Posts: 68
Loc: Texas
|
|
My dear, what a horrible way to be treated! (Or not treated, actually!) I'm so sorry for what you must be going through. My sister had the same thing and suffered through it for years - apparently just as you are. Sadly, she waited too long to finally have a hysterectomy, and now, at age 51, she is almost completely incontinent.
Since you say in the title of your post that you are serious about getting help, the way I see it is that you have some serious decisions to make:
1) Are you going to be wanting to have more children?
2) How much parenting can you honestly do in your present condition, and for how long?
3) Are you willing to continue to suffer and be told to "tough it out," and if so, for how much longer?
Why are you afraid of having a hysterectomy? I know that standard medical practice is to leave the tubes and ovaries in women under the age of 40, unless they are diseased. (The tubes and ovaries, that is.) If you are not planning more children, then having your uterus removed will not cause near the problems it will if you do not remove it.
I had a hysterectomy (removing only the uterus) when I was 38 years old. I had heard/read all the horror stories about how it changed your life - made you feel "less of a woman," etc., etc., etc. However - for me, it was one of the best things I've ever done. I never knew I felt so bad - until I felt so good!!! Because my tubes and ovaries were left intact, I was not thrown into menopause - I am experiencing it now - at 53 - just like nature intended. Instead of a second opinion, I actually got a third, and a fourth opinion! (I'm a bit of a fuss-bugit that way). I finally went back to my PCP who told me something that really got my attention. He said,
"The uterus is good for 3 things:
1) Carrying a fetus to full term. (Are you going to have more children? My answer, "No!")
2) Bleeding once a month. (Do you enjoy your periods? Well, no, not really!)
3) Getting cancer.
Then he said, "so, what are you saving it for?" This may sound very simplistic and a little too pat for some people, but it made perfect sense to me. (I was facing a possible cervical cancer at the time.)
There are 2 very ardent camps on the issue of hysterectomy. I can only tell you about my personal experience and about my personal feelings. Not for one second have I ever regretted my decision to have the surgery. And honestly, sex has never been better. (Blush, blush - please forgive me for being so personal here.)
Everyone's situation and experience is different. I urge you to find another doctor - you are not being treated properly! You are being dismissed, you are not being listened to, taken seriously, or respected, and in my opinion, that is not only unethical, immoral and shameful, it is mal-practice! You deserve better, and you owe it to yourself and your children to seek, find, and finally get the respect and the treatment you deserve!
Please accept my apologies if this comes across as "preachy" to you - I certainly do not mean it that way. My daughter suffers terribly from endometriosis - she is 33 and is finally deciding she will have the surgery. She is a single mother with 3 children and has been treated much like you have been by doctors. It just burns my blood to see those who have taken an oath to "First, do no harm," actually do just that by not treating their patients like decent human beings who deserve respect.
Whew! Sorry to have gotten on my soapbox - again. I will be glad to help you in anyway - please feel free to PM me any time. You deserve so much better than what you have been given, and those of us here at DB just will not allow you to settle for it anymore!
Take care, and please keep in touch with us. There are many good, knowledgeable people on this board who really do care!
Miss E
--------------------
"Ignorance in action is terrifying to behold!"
|
|
|
|
Previous
Index
Next
Threaded
Edit 
Reply 
Quote 
