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I appreciate the post! I think that doctors, after seeing thousands of patients, lose sight of the human condition....we become a 5 minute problem in their day...they may care very much while we are there in front of them...but in 15 minutes the next patient is ushered in & has a whole new set of problems....
As a nurse, I can tell you I've learned SO MUCH by being on the "other side of the stethescope"...I have always believed nurses (and doctors) are the patient's advocate, and sometimes their only voice in the medical community....but I see how it feels to have your medical providers "forget" pertinent and very important details regarding your condition and care...and when they have so many, demanding so much, I understand too, how difficult it is to attend to all their needs...I'm dealing with this problem now & it's so frustrating....managed care demands that physicians take on so many patients to make costs that it's no wonder they have difficulty managing to sheer numbers of patients demanding their time. Then insurance companies place so many barriers to obtaining necessary care...authorizations, limited drug formularies....I don't know what the answer is....if someone has a solution, I'd sure be interested in hearing it....
Meanwhile, each of us, must become such a strong self advocate....and sometimes that means demanding the physician look at what our disease does to our life...as hard as that is..it is the only solution...and not always a satisfactory one..as the results are so often unsatisfactory. OP's have been a resource for so many, and now it appears even they are threatened. So what is the answer? It appears it will all get worse before it ever gets better...