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Firefairy
Member


Reged: 11/26/03
Posts: 147
Loc: Mississippi
Re: Just want personal experiences...
      02/20/04 12:17 AM

I will post later on what my specifics and how I handle them but the most important things I can say are these:

1. Find a GOOD doctor

2. Find a support group

3. Most people with Lupus and/or Fibro have a "window", a period of several hours during the day that they feel the best. Utilize that time to do what is most important to you, or what you most need to get done.

4. Do not feel guilty about what you cannot do. If you have little ones, you might not be able to play kickball on some days, on those days watch "Finding Nemo" while cuddling, or have them read stories to you.

Love to all,

Firefairy
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Entire topic
Subject Posted by Posted on
* Just want personal experiences... lemongrass 02/16/04 09:45 AM
. * * Re: Just want personal experiences... henry1   02/16/04 11:15 PM
. * * Re: Just want personal experiences... Firefairy   02/18/04 10:06 AM
. * * Re: Just want personal experiences... lemongrass   02/18/04 05:23 PM
. * * Re: Just want personal experiences... Karma2678   02/18/04 08:41 PM
. * * Re: Just want personal experiences... lemongrass   02/18/04 11:28 PM
. * * Re: Just want personal experiences... FangZ   02/19/04 07:53 AM
. * * Re: Just want personal experiences... lemongrass   02/19/04 08:16 AM
. * * Re: Just want personal experiences... Firefairy   02/20/04 12:10 AM
. * * Re: Just want personal experiences... Firefairy   02/20/04 12:17 AM
. * * Re: Just want personal experiences... Firefairy   02/24/04 02:27 PM
. * * Re: Just want personal experiences... lemongrass   02/24/04 08:39 PM
. * * Re: Just want personal experiences... mpcagh   02/16/04 05:44 PM

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