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Meds, Medical Conditions, and Treatment >> Meds, Medical Conditions, and Treatment
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Firefairy
Member


Reged: 11/26/03
Posts: 147
Loc: Mississippi
Re: Just want personal experiences...
      02/18/04 10:06 AM

I want to help, but I don't even know where to start. Lupus (SLE) can take so many different forms, and you could end up having completely different problems/symptoms/solutions from me.

I was diagnosed at age 27, around 10 years ago. I started showing signs as early as age 15 but was misdiagnosed a multitude of times. I am on a very aggressive treatment plan, between that and OP's I have a much better quality of life than some people with SLE.

I read a lot, and have an extensive library of books on the subject. Some of the data is inaccurate or out-of-date, I buy everything on the subject from medical texts to new age solutions. I also belong to a medical study where they are using my blood to do research on SLE and AIDS, they frequently send me updated research. I have found books on living with fibro, arthritis, and Chronic Fatigue very helpful in day to day living.

My lungs and intestines have been the two most targeted organs. I have had a complete hysterectomy and several other surgeries.

Ask me specific questions and I will be glad to answer. There is no question to personal on the subject that you cannot ask me on this forum, someone else may also want to know or have input as well.

It is in most cases possible to control this disease, and most people even have periods where the disease is not active (remission).

I hope you end up not having it, but sometimes it is a relief to be able to put a name to what is wrong.
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Entire topic
Subject Posted by Posted on
* Just want personal experiences... lemongrass 02/16/04 09:45 AM
. * * Re: Just want personal experiences... henry1   02/16/04 11:15 PM
. * * Re: Just want personal experiences... Firefairy   02/18/04 10:06 AM
. * * Re: Just want personal experiences... lemongrass   02/18/04 05:23 PM
. * * Re: Just want personal experiences... Karma2678   02/18/04 08:41 PM
. * * Re: Just want personal experiences... lemongrass   02/18/04 11:28 PM
. * * Re: Just want personal experiences... FangZ   02/19/04 07:53 AM
. * * Re: Just want personal experiences... lemongrass   02/19/04 08:16 AM
. * * Re: Just want personal experiences... Firefairy   02/20/04 12:10 AM
. * * Re: Just want personal experiences... Firefairy   02/20/04 12:17 AM
. * * Re: Just want personal experiences... Firefairy   02/24/04 02:27 PM
. * * Re: Just want personal experiences... lemongrass   02/24/04 08:39 PM
. * * Re: Just want personal experiences... mpcagh   02/16/04 05:44 PM

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