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It really varies with me...sometimes exercise makes me feel better and other times it seems to drain what little energy I had. I can or can't stand to do it depending on what symptoms I'm feeling that day. My MIL has fibro, and she exercises everyday ... walking... and she swears by it. If she overdoes it though, it takes a while to recover. In the meantime she will still exercise. However, she is in the enviable position of having everything provided for her. If she overdoes it and finds herself feeling badly, the worse thing that happens is the house doesn't get cleaned that day.
I am so incredibly frustrated lately. It seems that I am in a period of lots of activity with whatever all is wrong with me. I'm miserable and exhausted but I have so much to do. I can't afford to have down time right now. I just started a new job and have already had to take sick time.
People (in general) are incredibly judgmental, and of course, I have always been really hard on myself. My husband is compassionate but there is only so much I can share with him or he'll get depressed. He has his own lala world that he lives in where everything will work out somehow. I am afraid that both our worlds are going to come crashing down on us. I am the primary (and right now the only) breadwinner of the family, and I feel my health slipping away. Depression and anxiety are pretty overwhelming at times too. I feel like I need the world to stop and give me a chance to get some of my problems under control. Instead I have a continual stream of deadlines to meet, work that requires intense concentration all day everyday, people to try to impress and be cheerful around, and all the while trying not to let people see me falling apart.
I am trying to find out what all is wrong with me and what I can do about it. I take notes on what people say here at the board and research it. I came across something about autoimmune hepatitis in my reading and what tests to diagnose it. I have a list of tests now to have run. I just need a good doctor and some quality time with that doctor ... not in & out in 10 mins.
BTW, I would be very interested to know of any good info sources you know about. My response was really to all of you that responded to my posting. Thank you for responding. The moral support means a lot to me too.