 |
pwptds
Journeyman
Reged: 09/02/04
Posts: 88
Loc: Highway to Heaven
|
|
I have been on pain meds now for 3 1/2 years after a car accident left me with continous, extreme pain in my back and shoulders; plus migraines 2-3 times a month. My doctor is more than happy to prescribe pain meds. to me, but I have to take more and more of then as I become more tolerant. So, I have spent the last few days weaning myself off them, so I won't have to take so much. But my question is this, are there any pain meds. out there that are good for long term (without destroying my liver) that won't leave you addicted? When I bring this up to my doctor, he says it's either this or back surgery, which could screw me up even more!
I feel like my only options are: a. being in agonizing pain everyday or b. being addicted to pain meds; and have to take more and more as my body builds up a tolerance to them. Even when I try to go a day or three w/o taking anything, the cravings and withdrawal symtopms are almost as worse than the pain!
My doc. has suggested putting me on oxycontin, and also something called a 'pain patch', but I have read a-lot of bad things about the oxy. Plus what happens when I build up a tolerance to that? In the past, he has prescribed Lortab 10's, Vicodin ES, and other meds. After a little while on one thing, it doesn't work as well, so he will give me something stronger. Plus I'm only 27 years old! What will I be on when I'm 40? Please if anyone is or has been in a similar situation, please please give me some advice. I feel like I'm fighting a loosing battle..and I don't want the pain to win!
thanks
|
rockystuart
Enthusiast

Reged: 03/11/04
Posts: 206
Loc: San Fran Bay Area, Calif
|
|
Take ;little holidays on your lower pain days (i.e. no meds just stay in bed) and take at least 1 week off every 8-12 weeks. You have to deal with pain but it eliminated addiction and some tolerance.
I have the same issues; I asked Dr for 30 norco - he gave me 120.
|
tone
Veteran
Reged: 06/29/03
Posts: 512
Loc: Chicago
|
|
your situation is all too common. This replay may not yet be practical, but just for the sake of a little hope, id like to mention that there are new meds being devoloped in which tolerance will not be as much as an issue. the first of these is already devoloped but i dont know when or where it will be availible. OxyTrex is Oxycodone and a tiny tiny amount of naltrexone. its well proven now that UltraLow dose Naltrexone with opioids deminishes the tolerance and enhances the analgesic effect of them. lets hope there are more solutions soon and easily availible. they will probably be on patent and pricey though. $$$$ rules
|
lespierce
Journeyman
Reged: 11/25/03
Posts: 53
|
|
Your story sounds a lot like mine. MVA, with lots of pain. I fractured almost every bone on the left side of my body, and have been managing pain for the last year an a half or so. Even though my accident was back in 91, I am just now having chronic pain. I have been diagnosed with severe osteoarthritis, and have tried several drugs.
I too was on the short acting meds, and once I switched to the Duragesic Patch (or pain patch as you refer to), things have gotten much better for me. I wake up pain free, whicj starts my day off on a good note. I do have breakthrough pain, but it is much more tolerable.
You do not want to be on short acting meds, if you are a chronic pain sufferer, since the tylenol, or APAP in the hydrocodone mixture, will do a number on your liver.
I would highly suggest trying the patch, and see how you tolerate it. Depending on how opioid tolerant you are, your doctor will start you on the 25mcg, or possibly the 50mcg patch, and adjust from there.
I have been on the 50mcg patch since March, and recently, I was having a lot of breakthrough pain on day 3, along with withdrawal symptoms. I saw my doctor, and we decided to replace the patch every 48 hours, which helps tremendously.
Also, if you decide to use the patch, sticking is an issue, especially if you sweat. I use a product made by Nexcare, called Tegaderm to help them stick better.
As far as addicition, I would not worry about it. I had the same feelings too, and if the medicine helps you to lead a normal life, then it is not bad. I look at it like water. I need water to stay alive, and would start having "withdrawal" if I stopped drinking water. The same thing applies to the pain medicine. Without it, I am miserbale, in pain, and don't want to do anything, and constantly have a grimace on my face. That's no life. Just because I need a patch that contains narcotic medication to take away pain, does not mean I am addicted, but dependent. There is a distinct difference. Just like I am dependent on Water to survive, I am also dependent on my pain patches, to live a normal life.
My only worry, is if they get stolen, or I lose them. Accidents happen. When I fly, they are packed on my carry-on baggage, to make sure they do not get lost. If I travel by car, I bring just enough to get me through the long weekend, in case they get lost somehow. This happened to me last x-mas. I took all my meds, kept them in my jacket, and they were stolen. I had to explain that to my Doctor, and he recommended filing a police report, etc. To remedy the situation, I only bring enough for the trip, and keep the rest home, where I could lower my dosage if necessary until refill time.
I have come to the realization that pain will be a part of my life until I am burried, or until an operation can fix my problem for good. 2 failed surgeries, and my last consultation said that permanent nerve damage was a possibility, led me to pain management. Now I replace a patch on my body, every 48 hours, to feel normal. That's life.
Best of luck with your decision, and feel free to PM me, if you have any questions on the use of the patch, or anything else. You are only a few years younger than me, so we are both in the same boat, and can probably help each other sharing experiences, and what works best to deal with the pain.
Chronic Pain is a disease, and should be treated as such. Don't worry about "Being Addicted". It's more like being dependent, than addicted. Sure, if you stop using it, you will go through withdrawal, and also have a lot of pain.
Best regards!
|
tone
Veteran
Reged: 06/29/03
Posts: 512
Loc: Chicago
|
|
Unfortunately pain meds are so much more obscure and harder to obtain than food & water so the analogy isnt perfect
|
lespierce
Journeyman
Reged: 11/25/03
Posts: 53
|
|
Yes, I suppose. I purchase my drinking water too. I am not confident with the allowed levels of arsenic in drinking water, so I purchase from Poland Spring.
For me to live a normal life, I need them both just as much. Without one of them, I am not going to be feeling very well.
|
kimbell1
Enthusiast
Reged: 08/20/03
Posts: 274
Loc: Route 666, Painville, Texas 6...
|
|
You are VERY lucky to have a doctor that will prescribe pain meds so willingly. I have tons of documentation on my back that is deteriorating so bad that I even got social security disability one the first attempt. Most people who apply, they have to spend years in appeals.
I write this because my doctor grudgingly gives me a low dose of Avinza which is supposed to be for long term pain use (I get 60 mgs whcih the mg range for Avinza runs up to 1660 mgs a DAY) and he complains when I keep saying that I need the 4 hydro 10 a day for breakthough pain ( I was orignally just taking the hydro 10 four a day.). I was taking 90 clonopin for stress ( I am so stressed that he wrote my first name and put STRESS as my last name on a perscriotion. This is funny now but I did not notice this until about 6:00pm after he had closed when I took the script to the paharamcy and had to wait until Monday to get it corrected.) Thanks to the Avinza, I was able to reduce the amount of clonopin by 1/3. This month I said that I felt I could get by with 60 a month. Was he happy? NO.
He still complained about the hydro usage. I have seen this doctor since Sept 1999 and very little has increased in the way of doasge even though my tolerance has. In other words, I am in pain most of the time and now just stay in bed rather than face another day in pain.
I may not lend the sympathic ear that you want and I understand what you are saying, but at least you DO have a doctor that seems to want you to live without pain. My doctor did put me on Oxycotin after I asked several times and he had ben unsuccesful with two other class two drugs. I saw so many posts that made oxy the wonder drug of pain meds that I wanted desperately to try it. The oxy made me climb the walls-it was like I was on speed.
But the fact is that back operations rarely last (about 5 years according to one surgeon I went to) and no doctor that I have seen over the years recommened it. One friend had a boyfriend that just made his back worse after the surgury.
It is not a pleasant thought to need such heavy duty pain killers at your age and I understand why you don't want to get any more addicted (I won't say that I am 'dependent' on the drugs). But I suggest that you read some other posters who can't get any pain medications no matter how bad their medical contition.
There are new pain killers coming out that are for long term usage like the Avinza.
But until they do, I honestly would love to have your doctor and have a life again.
--------------------
Paranoia is just hightened awareness.
|
pecan
Enthusiast
Reged: 09/09/03
Posts: 264
Loc: KINDA N.W.
|
|
I think that if you are a person in chronic pain, and you NEED a narcotic medicine to live a somewhat "Normal" life, DO IT.... There is No Shame in having to depend on something or someone. The Only shame there is, is the stigma that Society lays on us for being "different" than they are. Same as Bigotry. This Society has Pain management bigotry! No one understands, Tho they say"I understand", NO ONE understands, untill they walk in our shoes, how bad it is to be in constant, miserable, defeating, rotten Pain. It makes many Souls very Dark, if they have to live like that. It is like being constantly pulled apart at your very being. Thank the Spirits for compasionate Drs. who now treat chronic pain. If only everyone could find one who cares...................
--------------------
pecan
|
Trampy
Pooh-Bah
Reged: 04/02/02
Posts: 1217
Loc: Southwest U.S.
|
|
http://www.paintrials.com/oxytrex.html
|
Horace
Journeyman
Reged: 11/22/03
Posts: 70
Loc: Earth
|
|
I'd suggest you see other doctors and obtain other opinions if you haven't already.
I have no idea how bad your condition is medically, but (and I know this is going to sound somewhat silly to some), perhaps there is some sort of physical therapy or strengthing that you can do, no matter how minor, to alleviate some of the pain.
|
pwptds
Journeyman
Reged: 09/02/04
Posts: 88
Loc: Highway to Heaven
|
|
Thanks all of you who replied. I am lucky that fate dealt me a good hand with my doctor....he was my dads also, and he knows our family well. I just have to get it in my head that I will be having to take something the rest of my life, just to have a normal existence. Maybe in the near future someone will invent a 'wonder drug', and all we have to do is just sit back and enjoy life again! Now back to reality!
My good doc. is getting pretty old, and I worry that when he retires, I will have to see some young gun...who thinks that pain meds are bad.. and by then I'll be so dependant on them that I'll be in alot of trouble!
I guess I'll go ahead and let him put me on the oxy...what kind of side effects should I expect?
|
pecan
Enthusiast
Reged: 09/09/03
Posts: 264
Loc: KINDA N.W.
|
|
The only thing I didn't like about oxy is, that it made me grouchy. And it seemed that I needed to take higher doses more frequently than I liked. So my Dr. switched me to MSContin,(morphine) and that works SOOO much better for me, I can't tell you. On oxy, I started out with 10mg. 2 times a day, had to go to 3, 2mo. later 20mg. twice a day, had to go to 3. 2 mo. later that still wasn't enough, AND they are so expensive, Instead of putting me on 40mg.twice a day, she did the MS, 60mg. twice a day, and they work very well. I can go to 3 times a day if I need to, but so far I have only had to do that about 4 times. And the MSContin is about 2/3 of the price. If you Do get the oxy instead, you can apply thru the manufact. for Patient Assist. Program.
The phone # is 800-599-6070. From the very beginning I applied for that and was approved for 1 full year. Free of charge. Express-Scripts is the place that will send them directly to You thru the mail. But since the MS works better for me, I can't use the program, because they only have oxycontin on that. Good Luck 
--------------------
pecan
|
|
|
 |