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Meds, Medical Conditions, and Treatment >> Meds, Medical Conditions, and Treatment

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redhill
Banned. Flames, offending others


Reged: 06/02/03
Posts: 278
Loc: Hell on Earth, for now
Near desperation - lack of prescribers
      #166195 - 06/02/04 11:58 AM

OK - so I gave myself the test. Do I really need medication.
I had extensive help from a specialized (in pain) psychiatrist, and I lowered my intake of opiates to see how I would do. Also to catch up for previously borrowing from myself.

My conclusion is yes. I am not going to be the one that got out of control. I have been there, and I know I don't need to be near overdose to feel good.

But I need adequate medication. The psychiatrist even agreed and said he'd recommend to my GP (whom he knows) to treat me with narcotics indefinitely.
After three years of fighting, it seems as if someone is believing me, and I'll be able to receive meds on prescription consistently, rather than in stints. Up till now, I'd never be sure if tomorrow was going to be the day when they said "ok! from today on it's nothing but Facet joint injections, spinal injection, and good fresh air and lots of activity!"

I dreaded that day. In truth, I've come to the point where I do need a steady regimen to keep happy, to keep funtional, to want to get out of bed, to find a job again.
Yes I have mental issues (none of which are addiction), but my pain is real, not in my head.

June 4, 2004. That's when I see my GP, supposedly after the pain specialist has made his recommendation. OR so it would seem.

I called the GP's office, and it seems the two doctors have been playing phone tag for a solid week, nothing's been discussed, the GP is still "NOT COMFORTABLE prescribing", and in two days I will go into the first official real withdrawal ever if I don't get help. And I consider myself opiate dependent owing to pain, not a drug addict. BTW, NOT that I think of drug addicts as anything less than human beings, because they **&*& ARE, but that's for another discussion. I am in pain of what I am now, and I might be SOL in two days come refill time.

Can a GP, after all this, just tell me to go to hell and let a decent honest person (I like to think) just suffer not only the pain, but withdrawal sickness?
Can this happen in a Western country in 2004?

Can I quote him chapter and verse what statute prohibits a physician to inflict harm by idly sitting by and letting a CP patient fend for himself?

shocking statement coming up, I will allow you to scroll.
































ok...
further..











.
..
...
....

BUT, I have had it. I can't fight any more.
I have toyed with the thought of ..

scroll more..


...buying a gun and shooting myself in the head.
HAHAHA!!





NOwhere else can I say this in confidence.

In my state, I can say this and the doctors can't do diddly. This is one of those places where they can lock you up for it...after the fact, but not if you say it.

Besides, I am just trying to convey my level of desperation, I am certain you guys can understand and won't get worried, because you know I'm 99 per cent certain it won't happen.
I have a wife and a life, but I can't fight, and I can't live in pain all the time. It's certainly a huge dillemma.

I am tired, undermedicated as it is, and my GP "doesn't feel comfortable" (say it in a high-pitch girlish whiney voice and you'll see what I am trying to say. -- here's the see-saw...
me, in pain, nowhere else to go for now, fed up to the back teeth, and about to give up AND on the other side. the good doctor with a slight problem that I cannot even quite fathom, given that he has documentation, as well as the blessing of the hospital's pain management "Chef de Clinique" to treat my pain adequately. Legally he's covered, ethically he's definitely BETTER off treating me.

I need to prepare my talk and go in armed - with KNOWLEDGE not a weapon! I need to be understanding of his situation.
Maybe I can convince him with enough common sense, stats, facts, figures and statutes. But shouting, demanding and threatenting is the surest way to a life of misery right now..

So the lines are open! Please help me. I need all the info I can get. As for my own part in this, I am gathering some interesting articles from here and pain sites to aid in my defence.

All help is welcome. If this goes right, my life will change on june 4, for the better, much better! And you'll probably be seeing less of me in the case of success, but it will be because I am out pursuing a life with all the vigour of a regular 35-year-old, not a semi-disabled one.

Thanks folks, you all have my respect as it is, and if you can help me, my eternal gratitude as well..
Cheers for now,

Pascal - aka Redhill


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shellypm35
Stranger


Reged: 04/21/03
Posts: 13
Re: Near desperation - lack of prescribers [Re: redhill]
      #166209 - 06/02/04 01:08 PM

Very sorry to hear that you are having such a problem of it..I do however understand ...Where I live my state has a law allowing Doctors the right to perscribe meds on a reg basis for "Pain Management"...Have you ever checked out the
Madisin Pain Clinic..they are not cheap for the consult but
they do give you 6 months worth of meds..my Hubby uses them
and he really likes the help they have given them..they give
you what you need...I wish you all the best...its not easy
to go day to day in pain..and know one will listen...but they did help my hubby..maybe they can help you..


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IMSUSCOT1
Threadhead


Reged: 10/23/02
Posts: 875
Loc: usa
Re: Near desperation - lack of prescribers [Re: redhill]
      #166212 - 06/02/04 01:41 PM

Boy, I feel for you! Try this website..http://www.aapainmanage.org/
.they have lots of good articles & position statements to work with...maybe you could print a few out & take them with you...and you're right...you need to stay calm, cool & collected & try to work with this doctor..cuz if you Best if kept off the board him or her off..well, you know you won't get anywhere...not sure where you live, but if this doc doesn't prescribe, have you been through all the other docs that are possibilities?


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mas
Journeyman


Reged: 04/06/04
Posts: 96
Re: Near desperation - lack of prescribers [Re: shellypm35]
      #166214 - 06/02/04 01:43 PM

i am sorry to tell you, i have been there, am there, and unfortunately, i have been thru, thus far, 4 doctors who say they are ' not comfortable ' prescribing... add to that my ob/gyn (for the ovarian cyst she claimed was probably just myofacial pain) and you have 5...

it's op's or nothing at this point. i know no other solution for you. i got to the point where i was going thru alot of meds and money, and the bottom line to my husband was f**k the money, it's life or death right now...

i am now finally being treated, for only a month now, by a good pain doctor, and am on duragesic. it's not perfect, the dose could be higher (started on 25, now am on 50, but it wears off after 48 hours, and then it takes 12-18 for the new patch to kick in, BUT it's better than nothing. 36 on/36 hours off is still doable. i am sure you understand that) and tramadol actually helps as a breakthru... my doc will not prescribe narc breakthru meds... again, better than nothing...

my only advise is KEEP LOOKING, DO NOT STOP UNTIL YOU FIND A DOCTOR TO HELP YOU, GET ALL YOUR RECORDS, CARRY THEM IN HAND INTO EVERY SINGLE DOCTOR IN THE PHONE BOOK/INTERNET WITHIN 400 MILES OF YOUR HOME UNTIL YOU GET THE HELP YOU NEED.

i too, only a mere month ago, wanted to no longer live and suffer this way... and i am a mom to a little 2 year old, he is the only reason i am still here, that i made it this far...

until then, it's f**k the money, spend all you have to, to get the meds you need to keep going... know within yourself it's a temporary fix to a *literally* life threatening problem...

keep searching... go to er's and ask for referrals, go to and tell the moderator your region/location and they will do their best to help you find a doctor to help you... it's the NORTH AMERICAN CHRONIC PAIN SOCIETY, it's what they do... they help those of us in need of finding pain management.

it's not a perfect solution, but here is a start... cause nothing you say to your 'not comfortable' doctor will likely make a difference in the world... it's what they do, they pass the buck. jerks...

best of luck to you, but know you have to fight for this... i know the fight is gone, but look into the eyes of your child and you will find just enough more to get you where you need to be.

gentle hugs, mas


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prettyday
Threadhead


Reged: 02/09/03
Posts: 924
Loc: Coastal Sage Scrub
Re: Near desperation - lack of prescribers [Re: redhill]
      #166250 - 06/02/04 04:10 PM

Don't you dare let them get you out of the way! I have wanted to reach out and tell you I have been going thru the same exact thing you have...I mean I am on hold on the phone with the pain clinic and I am told my insurance only paid for a consultation.
I have to get ready right now. The continued pain has once again made me scattered, slovenly and frankly, bitter. So bitter and so angry.
You must not give up. Your posts are erudite, entertaining, compassionate and eloquent. They have said in anquish and detail what I can't seem to write anymore.

Take everyone's advice here and do the equivalent of chopping up all the furniture in the house to keep the fire burning, use everything you've got. Are you keeping some kind of letters or journal to your doctors? Start keeping copies of what you write. I just did this and finally got one concession; water-swim therapy. The pain clinic and my pcp are still tossing me back and fro; I do know what you say about "comfort."

I writhe inside when I see the expression on my PCP when he sees me coming....I finally realized that he is looking at a probable Long Term Long Acting Opiate pt, and that means a triplicate rx here... Do not believe that docs don't mind once they see you are in pain....you are a pariah....I did not even realize...finally I was trying to figure out how we are going to go on vacation, pay, delivery date falling at right time, and I smacked myself in the head and said, d'oh!!!! This is when one should be on a regular psych doc, pt, and time-released med program. But I am so busy trying to get past people's averted gazes (figuratively) at the med services that I did not even think about it.

Be mad. Be very mad. Just get mad here, and then write a reasonable letter off to the docs. Often. Without being obsessive, but without going away.

Good luck, and if you change your mind, will you at least shoot me first?

--------------------
First they ignore you, then they laugh at you, then they fight you, then you win.

- Mahatma Gandhi



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tone
Veteran


Reged: 06/29/03
Posts: 531
Loc: Chicago
Re: Near desperation - lack of prescribers [Re: redhill]
      #166253 - 06/02/04 04:26 PM

a psychiatrist that specializes in physical pain??

hmm thats weird. but, some anitdepressants help pain and psychiatrist do presctibe antidepressants.

depressed people also seem to be more sensitive to pain.

tramadols serotonin and noradrenaline enhancement seems to help pain, not just its moderate opioid property.


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redhill
Banned. Flames, offending others


Reged: 06/02/03
Posts: 278
Loc: Hell on Earth, for now
Re: Near desperation - lack of prescribers [Re: tone]
      #166256 - 06/02/04 04:49 PM

Yes, the hospital I went to for its pain clinic has a psychiatrist - or perhaps it's psychologist working as the head of the department.
Anyway, his two main functions, as far as I know are
1) BS detector, i.e. weed out the drugseekers from the pain patients,
and
2) Psychological counselling, such as determining whether you need additional things such as a neurostimulator, biofeedback, physiotherapy, or even the Lord him/her self (no disrespect, just being openminded).

The upshot is, you get quite a workup and a profiling, and from that, they determin how you see your own suffering, i.e. how you subjectively rate your pain, how you want to deal with it, etc.

Well, at least a specialist in the field now believes I am in pain and not just a drugseeker. That is a major plus. Whether he will be able to convince my GP to give me opiate therapy (which he feels is appropriate) is another story.

Luckily I managed to obtain some Ty. #1 from Canada, but it's no match for Roxicodone 15 mg, and the Caffeine is giving me jitters from heck (Hell yet to come, hehee).

Thanks all for the support!!! I am still arming myself as we speak. Friday is D-day, so to speak.

Cheers all,!

Red


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jmnss
Stranger


Reged: 04/27/04
Posts: 16
Re: Near desperation - lack of prescribers [Re: tone]
      #166258 - 06/02/04 04:51 PM

I haven't been reading here long enough to 'know' you, but I know EXACTLY what you are suffering through. Aside from the psychiatrist you've pretty much described the last ten years of my life.

The other posters are correct. You need to literally go door to door in search of a doc you are comfortable with and one who is willing to work with you. If your appt on the 4th doesn't get you the help you need, don't give up. Start over....and over and over and over. What ever it takes.

My search finally lead to a local doc who is kind, compassionate and makes time for me when I'm episodical (in MEGA pain, not just moderate pain). For my state, he's fairly liberal with the meds. A lot of that has to do, I'm sure, with having earned his trust and trying not to take advantage of his generous nature. But, still..... it's never quite enough. Unless I double up on my Rx, I have to decide on a night of misery or a day of misery. Some choice. Years ago, I started to suppliment with OPs. Right now, I'm in crisis due to being out of meds, unable to refill locally for another week, and my last OP order, which cost far more than I could afford, seems to have vanished. Now I'm suffering both day and night, waiting for a second order I've placed.

I guess the point is, you're not alone. For what ever piddling comfort that might be.

And the moral to my rambling? The world (and this message board) is a better place with you in it. Hang on, cling tight, inch your way through it and let us know.


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prettyday
Threadhead


Reged: 02/09/03
Posts: 924
Loc: Coastal Sage Scrub
Re: Near desperation - lack of prescribers [Re: jmnss]
      #166262 - 06/02/04 05:20 PM

Sky Queen gave a great link when she let us know about Braintalk; overseen by Harvard Med, I think... and here are two really diverting dialogues that helped and help (!!!) me so much knowing I am not some bad person prowling out there trying to be in pain just because it is more fun than going to Disneyland:

There was an article written in a doctors' journal; then a poster satirized it; think you will recognize things....

http://brain.hastypastry.net/forums/showthread.php?t=6328&highlight=borderline

then:
http://brain.hastypastry.net/forums/showthread.php?t=7020&highlight=borderline

--------------------
First they ignore you, then they laugh at you, then they fight you, then you win.

- Mahatma Gandhi



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dsmmcm
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Reged: 11/08/03
Posts: 364
Loc: southwest US
Re: Near desperation - lack of prescribers [Re: redhill]
      #166272 - 06/02/04 06:21 PM

redhill,
God, I feel for you. I have been to the depths of hell, and somehow emerged feeling better. YOU CAN DO THIS TOO. Keep searching for help. Get your wife involved. Take her into your next appointment with your GP. Let her tell your GP how you feel. Force your GP and psychiatrist to talk. Call both offices repeatedly and force the issue. There is no excuse for doctors not communicating-- it is their responsiblity to do so. Tell them that.
In the mean time, hang in there. I know how easy that is to say, and how (almost impossible) it is to do. But you have to do it.
D


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buey
Old Hand


Reged: 01/15/03
Posts: 453
Loc: USA
Re: Near desperation - lack of prescribers [Re: redhill]
      #166279 - 06/02/04 07:01 PM

Redhill,
There is a site on the net, and I wish I had the URL. It was a guy named Skip something....anyone know?
He has an entire site devoted to CP and he had a list of physicians for each state that would prescribe opiates without any problems for people who have adequate documentation, plus they put their patients through thorough workups. You of course have to sign a contract stating you will not obtain any pain meds from anywhere else except from the ER. When I was looking, I found a clinic in NY that sounded perfect for you. You have to go there and stay for a week while they are titrating your meds. They list hotels in the area where you can stay. I believe you go to the clinic on a daily basis. After they titrate the meds, I think you are set for a year, although the physician in charge of your care works with your GP for follow ups, etc...
Is it Skip Baker? Does anyone know?
Redhill, don't know where you are located but I am sure you can find a similar clinic in your area of the country. If you have to fly and stay for a week, do it. At least they can help to give you your life back and you won't have to deal with being jerked around anymore.
Please do not even consider taking your own life. Make it 100% sure you won't, not 99%. You are a valuble human being, you have people who love you. There is hope for you to manage your pain. You just have to find the right doctor.


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Anonymous
Unregistered




Re: Near desperation - lack of prescribers [Re: redhill]
      #166298 - 06/02/04 08:14 PM

Dear Red,
I know from where your coming, 15 years chronic pain 5 herniated discs and ddd, all they want to do is stick needles in me, give me tests and experiment on every new therapy that comes down the pike and I still have no answers. I'm on 40 disabilty and my good old Dr. who understood me retired so I continue to search you go to 15 Dr's. and get 15 opions all different and all a small fortune and NO guarantees. Last specialist said "when you can't take the pain anymore we'll "try inserting an artificial disc" Gave me 60 5/500 vicodins and sent me a letter stating new york state law says he can refuse treatment to me given a 30 days notice" meaning he was NOT going to perscribe anymore meds for me unless he operated, so I went to other pain clinics and they all want to do epidural steriod injections, A spinal tap in reverse, that just does NOT work for old injuries but they cost around 1,200 a shot in a series of 3=3,600 for a treatment that is more painful than my condition, than another perscribed morphine, at 47 the last thing I need is an addiction to that when that Dr. decides he no longer wants to treat me so I passed on that one, rite now I can pretty much function on 10/325 Norco's but to get a Dr. to rite that is next to impossible, so I use op's and have a monthly Dr. visit that barely speaks english and refuses to up my rx. So I continue to search the people on this board are all pretty nice and caring and are giving you decent advice, but its your body and life which means YOU must get involved with all the knowledge you can. I found a site that is very good but he couldn't help me cause the nearest Dr. was like an 8 hour drive, but check it out and let me know how it goes,www.edschronicpainsite.com he keeps lists of good Dr.s and lots of info concerning pain and different aspects of it, Good luck, and stop thinking of hurting yourself, there ARE people that WILL help you, your still young and have lots of time to knock on doors, and behind one of them is going to be the one you've been looking for. But try ED's and keep me posted, Tim


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redhill
Banned. Flames, offending others


Reged: 06/02/03
Posts: 278
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Re: Near desperation - lack of prescribers [Re: ]
      #166308 - 06/02/04 08:54 PM

Dear all,

this is such an overwhelming outpouring of genuine empathy, strong support, and great advice!

I seriously do not know who to thank first, or which piece of advice (all good) to follow first - but time will tell.

I want to reply to each one of you separately, even just to say thanks, but for the evening that's just too much labour. After all, I need to follow up on all those leads.

The New York clinic sounds like a good - and feasible - idea.

Plus I am going to try out Ed's chronic pain site as well. And if Friday things shouldn't work out, I am just going to start 'knockin on doors', visiting doctors, travelling around if need be. That I can still do, mentally, physically, and financially for now.

Thanks all, I am grateful for all your support. I really mean it!

Red


Cheers again, Redney



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purppoptart
Journeyman


Reged: 04/28/04
Posts: 83
Re: Near desperation - lack of prescribers [Re: redhill]
      #166340 - 06/03/04 03:05 AM

Hey Red! So sorry you're having a tough time of it. Maybe your psychologist can recommend a GP who isn't afraid to prescribe for you? If your GP won't do it, kick him to the curb - you should not have to suffer in this way!!

--------------------
......and his hair was.....PERFECT!!


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Janbo
Newbie


Reged: 02/02/04
Posts: 25
Loc: Northeast, USA
Re: Near desperation - lack of prescribers [Re: redhill]
      #166348 - 06/03/04 04:22 AM

Don't give up, Red & Pretty Day ! You aren't alone in dreading that "look" given to you by doctors who don't believe - or rather, don't want to believe - the pain you are enduring.

As you can see from the replies on this thread, most of us have dealt with "the look" in the past and many still have to face this contemptuous sort of thing on a regular basis. Sometimes, "the look" is accentuated with "the sigh" or (in a Trifecta, of sorts) you get "the look", "the sigh" and the first statement out of the doctor's mouth is: "What is your problem...today?" (delivered in a put-upon whine). Rather than just being afraid and depressed, I think we should be fighting mad. After all, we never chose to be in pain. Some doctors choose not to really treat it yet are perfectly willing to take our money for an office visit and use that opportunity to disapprove of us at the very same time.

So please, don't get down on yourself for feeling this way about being in pain and having no one believe or trust you. The real sin is that we live in a society where chronic pain patients have become "the problem" and that there are doctors (plus the DEA) who feel they can get away with acting towards us in such an insolent manner.

Political and social trends come and go. Eventually enough chronic pain patients and those who care about them will instigate a backlash which will send the pendulum swinging back in the other direction. Until then, (if you can) please look up chronic pain websites to see if you can't get referrals to more compassionate (and reliable) physicians. You may have to travel, which isn't easy when you are in pain. Great doctors are still out there - but finding the ones who aren't afraid to practice sound medicine - courageously - sure isn't an easy task.

--------------------
JB

Not really invisible - it just seems that way


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catmom
Board Addict


Reged: 06/20/03
Posts: 320
Loc: Midwest
Re: Near desperation - lack of prescribers [Re: redhill]
      #166397 - 06/03/04 10:02 AM

Redhill-

I am not a cp sufferer, yet. (One never knows what tomorrow may bring, especially as one ages)

However, I want you to know how deeply your post moved me. I am 44 and have felt suicidal in my life for other reasons. Knowing that you feel as desparate as that, really makes me want to weep.

Thank God (or whatever powers are out there) that you are a member of DB. This is THE place to find the honest, nonjudgemental experts who have been in your shoes (or close to it).

Be sure to make this thread one of your favorites so you can easily return to it to see the practical advice others here will give you. You are surely not alone!

For myself, just know that I care....

Catmom

--------------------
If it's not immediate, it's not gratification.


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redhill
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Reged: 06/02/03
Posts: 278
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Re: Near desperation - lack of prescribers [Re: catmom]
      #166408 - 06/03/04 11:17 AM

Quote:

Be sure to make this thread one of your favorites so you can easily return to it to see the practical advice others here will give you. You are surely not alone!





I did mark it a favorite, as per your suggestion.

Also gave it five stars, not based on my original post, mind you, but because of the wonderful contributions.

thanks

Red


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lardaman
Banned: flame wars, insults, offending others


Reged: 08/14/02
Posts: 244
Re: Near desperation - lack of prescribers [Re: redhill]
      #166890 - 06/05/04 05:16 PM

I am very glad the moderators are keeping politics off this board. It has no place here. We all have one thing in common here and it is not politics!

Edited by lardaman (06/05/04 08:35 PM)


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redhill
Banned. Flames, offending others


Reged: 06/02/03
Posts: 278
Loc: Hell on Earth, for now
Re: Near desperation - lack of prescribers [Re: lardaman]
      #167012 - 06/06/04 01:05 PM

Quote:

I am very glad the moderators are keeping politics off this board. It has no place here. We all have one thing in common here and it is not politics!




Did not see politics discussed here, well not until your post that is.
Anyway, I fully agree with you.

Red.


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sassyg
Member


Reged: 08/11/02
Posts: 162
Loc: Coloraddy
Re: Near desperation - lack of prescribers [Re: redhill]
      #167014 - 06/06/04 01:15 PM

I know from my own personal (limited) experience with injuries such as a broken wrist and surgery, etc, that being in constant pain is VERY bad for the soul and the psyche!!!!! When are doctors going to wake up to that fact???

I really feel for you, Redhill!! I wish there was something I could do for you!!

Good luck, and don't give up!!!

--------------------
Sassy!


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redhill
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Reged: 06/02/03
Posts: 278
Loc: Hell on Earth, for now
Desperate days are over [Re: sassyg]
      #167021 - 06/06/04 01:34 PM

You, and others here, have done exactly that - you have helped.

THis has been a great place with wonderful people.

It breaks my heart that I am now not sure as to where to go, in light of the privacy/google thread in which we both participated too.
Because it's nice to receive help and support, and it's nice, also, to offer support and advice when one can.

I'm still on the fence.

But let this post be the first post where I can post my
GOOD NEWS!

My GP has decided to take me on, long term, as a patient, and he prescribed me what is known as the holy grail in long-term pain management.
I couldn't even believe my ears, but he suggested OxyContins.

Takes a few days, since they arrive by courier ( I take it not by USPS), so I will be able to find out for myself if they really work well or not.

But, whether or not I feel good, I am going to keep doing what I can to fight for America in pain. I am still hoping to get my website up, for one thing.
Even if I get all the help in the world, that still leaves, theoretically, fifty-million less one patient.

Cheers,

Red


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sassyg
Member


Reged: 08/11/02
Posts: 162
Loc: Coloraddy
Re: Desperate days are over [Re: redhill]
      #167023 - 06/06/04 01:38 PM

THAT IS GREAT NEWS!!!!!!!!!!! I am so happy for you, Redhill!!!

It's so important that, when we're down, we share it, and get the support we need. It's equally as important to share our success and solutions.

I'm so happy for you. Try to keep coming back for the others who need your insight.



--------------------
Sassy!


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Job19_25to29
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Reged: 05/27/04
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Re: Near desperation - lack of prescribers [Re: redhill]
      #167044 - 06/06/04 05:38 PM

I just read your post, redhill, along with the rest of this thread. I really empathize you - I have tears in my eyes after reading how terribly tough it is for you. I've been (and still am - but now nowhere near as bad) at a similar position to you, but at the same time quite different. I haven't had all of your experiences (though I know the problems with doctors etc... very well - the LOOK, the underdosing, the lack of compassion, the judgementalism, the ignorance etc...). But I KNOW that the emotions you are suffering are so very similar to mine, and that is why I believe that anyone who is in really bad pain (whatever kind) can relate so closely. I've had a LOT of support and good advice from other sufferers (of many kinds) and 3 of the best pieces are

1) 'This too will pass' - sounds like a bit of a cliche but true nevertheless.

2) Try and just keep living life one day (or hour, or minute or even second!) at a time, then you just have to only get through that next 24 hours, hour, minute or second. That way I find I don't have the often horrific thought that whatever is bad at the moment is just going to go on and on, and that helps keep out the despair and fear. I just have to hang on for that next day or hour or minute or second. It IS easier said than done but with practice and encouragement I find it does help a lot.

3) this I have found the best - prayer! I didn't believe there could be a God (one big objection was why would He or Her or Whatever allow such suffering!!) but I got so very, very desperate - I mean right to the very, very edge (I just KNEW my time had come) - and I suddenly realised I had nothing to lose by asking Him or Her or Whatever for some help, 'cause NO ONE else could or would help. It was a very big surprise when I did get the help I needed. So I carried on praying and I carry on getting help - not always what I want, but in perspective ALWAYS what I need.

I wish you the very, very best redhill - remember that you are not alone in this.


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redhill
Banned. Flames, offending others


Reged: 06/02/03
Posts: 278
Loc: Hell on Earth, for now
Re: Near desperation - lack of prescribers [Re: Job19_25to29]
      #167122 - 06/07/04 09:31 AM

Thanks all!

I feel like, well, I've reached the end of a quest.
Two-and-a-half years of assorted pain, sporadic relief, the LOOK from doctors, (as it is called here), the disbelief, the new rounds of drugs, the hell of self-medicating, and almost losing control, just because I felt the need to take matters into my own hands.

I still think we ought to have that right, but would still strongly want to advise anyone to find a good doctor.

I am a dreamer, and not everyone can/will find one, and will need to self-medicate, find an OP, etc. And so they should be allowed to.
You don't choose to be in pain, yet, if you suffer, you seem to have opted for a tough life anyway.

Due to our draconian laws, for instance, I've noticed one (well, more) huge change:
Take Fibro, for instance. A few years ago, quite a few sufferers found great relief from long acting narcotics.
Then, recently, with their demonization, you will see that the official stance on it is that opiates don't help FMS patients, and all the official organizations seem to recommend NSAIDS, antiepileptics and Tylenol (GRRRR!!)
I've an idea. Instead of deciding what works, and making policy based on prohibition, why not just ask patients what works for their pain!

What I am saying is, I am going to be feeling better soon, but I won't forget the hundreds to thousands on this board, and the millions out there in the world (not just America, mind you) are suffering needlessly, for whatever reason, and as a result of any disorder and disease.

I will keep contributing here, I've decided. This war on pain patients needs US as an opponent, and I won't leave our army, I won't quit because I've got mine.

Be pain free all.
and thank you for your support, without which, I would have blown off my visit to the psychologist, which I thought was going to be useless, and because of which I am getting proper medical care and physical therapy.

Redhill


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SuseCue
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Reged: 04/25/04
Posts: 169
Loc: Tampa, FL
Re: Near desperation - lack of prescribers [Re: redhill]
      #167125 - 06/07/04 09:48 AM

Hello Red,

I am a fellow chronic pain sufferer and I just wanted to say hi and congratulate you on your new pain management program. It is wonderful of you to post here and show people it is possible. It may never be easy, but it is possible. No one should ever give up their search for real Pain Management.

I hope you have success with your new doctor. I have been in Pain Management for several years and it is a long process to find the right combination of meds and what ever else your condition requires to get you the relief you need. It is a process of trial and error.

Best of luck to you.

Susie/Cami

--------------------
Fighting for peace is like screwing for virginity.


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