Dyno
Journeyman
Reged: 03/23/04
Posts: 89
Loc: Washington
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lovepink cute name, I have gotten on with my
life long ago. My post was regarding ER's
being useless. not needing a pm as you say it
may have struck me the wrong way true you
know why? I sure can think of 100's of
better inspirational words I have been to several
pm's they will give you a weeks worth of meds
and want to see me weekly I am a one person business
I would hire someone to do my business for me while
I am gone done that, My business is in my home
been ripped off a few times little things
here and there I will continue to go see my
pm every 3 months and use op's as long as they are
available. I made that decision the last time I
was ripped off by an employee. I stand on my own two
feet never been a whiner I am a I can do it kind
of person and always have been I really do know how to
live. I also know how to be compassionate never will I
tell a hurting person to just get on with your life,
words can really hurt a person. It didn't hurt me
it was not directed at me It would never hurt
me I am not thin skinned but that guy or gal was really hurting and did'nt need to hear that I have read back in imuscot't
other post and now see this is how this person is and
always will be. Don't take that wrong she can say anything she wants this is a open forum And I will say what
I want but it will never be to hurt anyone. It is not
a you go guy or girl thing it is just rude on this side of the planet.
wishing all pain free days D. 
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Wishing all pain free days D.
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BFThornberry
Journeyman
Reged: 01/23/04
Posts: 86
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(In a very calm and friendly tone with a smile on my face)
Dyna -
We can't really take the time to write what I just wrote before and during every message so sometimes we have to give the poster the benefit of the doubt. I am in no way being sarcastic - I'm really not. My point being that what if Imsuscot1 had been visable to you and smiling as she stated "find an op and get on with you life" What if her tone was soft and caring? What if she added "so you can" before "get on with your life". I am just trying to maybe help you see that you might have taken her the wrong way. I think she was meaning to be compassionate. Woulnd't it be nice to try to give her the benefit of the doubt? I think the tone you heard in your head was "just Best if kept off the board up and get on with your life". I TRULY doubt this was the tone. The words taken in that tone ARE insensitive and hurtful - but do you really think another pain patient often uses that kind of "poor you - get over it" attitude with a pain patient reaching out for help?
Just think about it maybe?
Can't we all just get along? :grin
Britney
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lovepink
Goddess
Reged: 01/01/02
Posts: 1476
Loc: NYC Metro Area
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Quote:
lovepink cute name
Thanks Dyna
I would have deleted my previous post had there not been replies when I re-checked it. I've had a record-breaking (for me) incredibly stressful week both physically & emotionally and I was in a very dark mood - still am - and I wrote about picking oneself up & taking control for me as much as anyone else. I apologize if it came across as lecturing anyone.
Lovepink
Edited by lovepink (05/06/04 05:45 AM)
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Pickledoo
Old Hand
Reged: 09/20/02
Posts: 411
Loc: New England
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While I agree that inflections and intents can and will be misinterpreted in reading of posts, I think more importantly, these issues should be taken into consiteration when WRITING posts.
If we keep in mind that what we write may be construed as hurtful, then perhaps a bit more care should be taken when trying to get our points across. We are here to support one another. Not to berate whether intentionally or not.
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Dyno
Journeyman
Reged: 03/23/04
Posts: 89
Loc: Washington
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Just wanted to share this,
Take Care Of Yer Friends
Friend is a word that I don't throw around.
Though it's used and abused, I still like the sound.
I have it for people who;ve done right by me
and I know I can count on if ever need be.
Some of my friends drive big Limousines.
Own ranches and banks and visit with queens,
and some of my friends are up to their neck
in overdue notes and can't write a check.
They're singers or ropers or writers of prose
and others, god bless'em can't blow their own nose!
I guess bein friends don't have nothin to do
with talent or money or knowin who's who's.
It's a comf'terbul feeling when you don't have to care
Bout choosin your words or bein quite fair.
Cause friends'll just listenand let go by
those words you don't mean and not bat an eye.
It makes a friend happy to see your success.
They'er proud of yer good side and forgive all the rest
And that ain't so easy, all the time,
sometimes I get crazy and seem to go blind!
Yer friend just might have to take you home.
Or remind you sometime that you;re not alone.
Or even so gentaly pull you back to the ground
when you think you can fly with no one around.
A hug or a shake whichever seems right
Is the high point of givin , I'll tellya tonight ,
All the worldly riches and tributes of men
can't hold a candle to the worth of a friend.
Baxter Black. 
Wishing all pain free days D.
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Wishing all pain free days D.
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johng
Board Addict
Reged: 02/13/03
Posts: 358
Loc: great lakes
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I am depressed right know. I have been non-medicated now for close to 2 weeks. I do not get my epidural untill next weds and follow up with my doc a week from monday. I am currently in pain!!
I dont feel like playing wiith my 2 daughters. I dont feel like typing on the computer because I have shooting pain down my leg. I have called my MD office twice no call back yet... WHen I get in these moods I like to take the kids out for a drive stop and get an ice cream and com home it kills one or two hours but I am STuck to the house because I do not want to miss my MDs call so I can Beg him to medicate me. I know when i see him next week I will be signing a narcotic contract. But i cant wait that long..
Chronic pain is such an energy Zapper. I have not had an W/D THANK GOD for small favors. I can truly see what is pain.
sorry to be depressed but I am in alot of pain today and stuck to a phone that may never ring or may not be proscribed relief.
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Ask and it will be given to you Matthew 7:7
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night_shade
Threadhead
Reged: 08/26/03
Posts: 907
Loc: The State of Hockey
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I hate to advocate deception between spouses, but in your case, it may be advisable to order from an OP and have the meds delievered elsewhere or go pick them up yourself at the hub.
I feel so bad for you, and wish there was something more I could do to help.
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Never underestimate the predictability of stupidity.
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Dyno
Journeyman
Reged: 03/23/04
Posts: 89
Loc: Washington
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I agree with night shade you must
take care of your self 
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Wishing all pain free days D.
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johng
Board Addict
Reged: 02/13/03
Posts: 358
Loc: great lakes
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the phone never rang I wasted a whole day
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Ask and it will be given to you Matthew 7:7
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Packersfan
Stranger
Reged: 02/28/04
Posts: 23
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I'm sure you thought of this, but you must find a new doctor or go another route.
Another option is to go to your local ER at this point OR call the doc's answering service and demand that he (or whoever's on call for him tonight) call you back.
Docs on call must return your call.
Try that.
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IMSUSCOT1
Threadhead
Reged: 10/23/02
Posts: 895
Loc: usa
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Well, I'm glad it seems we finally agree....you see I know JohnG has been around the boards awhile....and my intent was exactly ..... you are in pain...your spouse doesn't think you should order from an OP.....at this time, ordering from an OP would essentially solve the problem, allowing you to get on with you life....it was NOT meant in any derogatory way at all....sometimes you have to do what is best for you.....let's see...be depressed, be in constant pain, wait daily by the phone for the call that may never come.....OR order from an OP and get on with your life....you've taken this way farther than it had to go and as so MANY other's have pointed out...the comment, which if taken in CONTEXT, was meant to give support to someone clearly debating something that is a simple answer to his problem.......I don't know why you even got involved...if JOhng was offended, I'm sure he's perfectly capable of speaking up for himself.....
It was meant to say...it's ok, to take control & find a solution to your problem....your wife may not approve, but she's not the one hurting....get it???
BTW...thanks lovepink & all who GOT the message I was sending....I think I qualify as one who has been through the mill....and sometimes you have to take matters into your own hands & do what you need to do to get on with your life & it's OK.....you can say over & over how you can't....but if you really want to you can. nuff said
Edited by IMSUSCOT1 (05/10/04 09:09 PM)
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Dyno
Journeyman
Reged: 03/23/04
Posts: 89
Loc: Washington
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Hi M,
We do, this person seems to need a little harder
pushing to take care of himself. I agree he needs to do
what is best for him.  If I put my big nose
where it didn't belong I am learning
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Wishing all pain free days D.
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johng
Board Addict
Reged: 02/13/03
Posts: 358
Loc: great lakes
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thanks to all for the imput. It also helps to know others think of me. It would be so easy to OP(especially after friday) for me but my spouse dosn't like the idea and the other reason is i am on disabiltiy and the money i get barly pays the bills. so i dont have 150-200 dollars to spend. with my health ins the doc visit is free and a months supply would only cost 15 dollars.
please dont think of me as a whinner. it is just I have no one else to turn to.
please keeping thinking of me (a few prayers wouldnt hurt)
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Ask and it will be given to you Matthew 7:7
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lovely11
Board Addict
Reged: 01/03/04
Posts: 338
Loc: With my dog at my side
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Quote:
I don't know if you are referring to my post or not. I am not as lucky as you I can't afford to fly around looking
for a good Dr. I do believe that Dr's should be more compassionate and caring, thats what they went to
school for to heal and make comfortable HA!HA! not anymore only for the BIG BUCKS. I have found a good OP and have
gotten on with my life long ago. D 
I think this poster is confused because their post fell right after ISUSU. I don't think she realizes that you can see who the poster is replying to in red in the subject line.
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Lovely - devout dog lover
I wish I were half as good as my dog thinks I am.
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IMSUSCOT1
Threadhead
Reged: 10/23/02
Posts: 895
Loc: usa
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JohnG...I'm sorry you can't afford the cost of an OP consult...and yes, it's outrageous...I don't know where you live...but I think you may have to try a number of different doctors, on your plan(are you on Medicare?..if so many docs take Medicare)...I swear I went through at least 20 before I found one who WOULD treat me appropriately..and then it was in another state! And if they're not prescribing you pain meds..it's not doctor shopping it's simply finding a physician who will treat you appropriately...and the money thing is one of the reasons I fly to see a PM doc ...it's actually cheaper for me than OP's & I can get a far greater quantity of two schedule II's vs. not enough hydro to make it through the month...but if your on disability this may not be an option...not sure where you're located...pm me if I can give you more info...or try visiting the ER....and I've actually had to visit more than ONE ER in one day to get treatment....walked out of one AMA cuz the doc wasn't willing to prescribe anything....it's tough to get compassionate & adequate PM and when your in pain, you "look drug-seeking"...you've just got to persist until you're heard...again PM me we may be able to come up with an option that works for you...but don't give up...if you have a private insurance plan, getting a nurse case manager assigned may be the key to actually getting a referral to a PM specialist who will treat the least expensive way...and that is with opiates...so that's an option too
to Dyno..I didn't consider you might not be aware my reply wasn't to you...I'm sorry if you felt targeted..I've been both places, under treated (for five years) and treated adequately...and there is no comparison to the quality of life you regain with adequate treatment...it is out there, even though I know it's difficult to find...keep trying
Edited by IMSUSCOT1 (05/11/04 07:43 PM)
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Sky_Queen
Fly Girl
Reged: 12/03/02
Posts: 1971
Loc: Texas
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Help me remember folks - which OP was it that was offering you could pay like $10 a month or something like that? Maybe that would be an option? I feel very sorry for your situation and will keep you in my prayers.
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redhill
Banned. Flames, offending others
Reged: 06/02/03
Posts: 278
Loc: Hell on Earth, for now
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Thanks much for the recommendation! I am going to check on her (Miildred) right away.
My stepmom-in-law (that's her full 'title' I guess -lol- ) lives near Dallas Tx.
I hope living in Tx is in her favour; I understand that Tx has a relatively strict and favourable set of laws helping out those in intractable pain, aptly referred to as the "intractable pain act", the premise being that no Texan ever need be in pain. OK, seeing is believing, but let's hope for the best.
I appreciate all you guys' help very much. Don't let the (too) long period between your messages and my replies fool you into believing otherwise!
I am weighing all my options, and hope to have both my mother-in-law and myself pain-free (or close) by the end of this Summer at the very earliest!!!
In case you have any more recommendations, I myself am in Southern NH! Who knows, maybe that'll give someone an idea! Thanks very much indeed! Hey maybe I'll even check out Dr Mildred for myself! Could be the ideal solution.
Thanks again, to any and all who've responded! and once again, to johng
who said
Quote:
Chronic pain is such an energy Zapper. I have not had an W/D THANK GOD for small favors. I can truly see what is pain.
I hope you're getting help, or about to, or ANYTHING that makes you feel better.
I'm just one of the hundreds here, I am sure, who has kept reading the board and hoping/praying that you will be able to find help and relief. Please hang in there, is all I can say. Thank God for some of the more knowledgeable folks on this forum who have seemingly endless information and great compassion. Keep asking people, and you'll find anything you want to find out about. Best of luck. I know I'm no help to you and I wish I could make it rain MS Contin for you!
Quote:
his tapper was my first succsesful one and as it was going welll the cut me off. also I found my lowest effictive dose (ie real pain vs W/D or tapper pain)
I reread this part and boy does that ever suck! You try to be the model patient, you try to humour them, you TRY to do everything they want you to do, and they just take advantage, saying 'oh, see, you don't need narcotics at all now!', as if you need only be on them to sustain an opiate habit in the first place. I mean, you've now established you have serious pain and it's not caused by withdrawal. In other words the original pain is back and it's making life very hard. Those doctors that just cut you off without thinking it through are creeps.
I sincerely hope you will be able to find a doctor, preferably a new one (fresh start) with a fresh point-of-view and a dose of common-sense. Check out the chronic pain websites and maybe you can come up with a proper doc.
Here's a thought, might as well give it a try: have your previous prescribing doc write a note to whoever is treating you now, recommending that they at the very least continue with your opioid treatment as it was when you were stable, so as not to cause too prolonged and harsh a break in the prescribing continuity.
In the meanwhile you could keep looking for a more understanding pain doc, who will, if and when s/he accepts you, at least not let you slip through the cracks and into a W/D. If they are anywhere near human(e) they won't just let you suffer.
I will keep my fingers crossed for you - no matter what you do (but please do consider your loved ones in your decision-making) It all seems complicated, but I am certain that this does make sense!
Hang in there, Johng!
Red
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johng
Board Addict
Reged: 02/13/03
Posts: 358
Loc: great lakes
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Well to all I had the epidural. But first I need to acknowledge some one first:
Night Shade Your thoughts and PMs mean a real lot to me and can not thank you enough
To everyone else---thanks for being here-- I surrvied on this board for the last sevral weeks because of your support and positve supportive post.
I had the epidural. the my MD discovered while trying to get the needle in that I had devloped ALOT of scar tissue in the area of the nerve that is hurting hmmmmm. He was able to get the needle in after much work. when I satup he was sweating he called a scrpit in of hydro right in the treatment room. and made sure I was still seeing him on monday. he wants to set up my med schedule.
so after along three weeks I am finaly going to get the help i wanted for several months.......
My S/O talked alot about how i percive pain. I told her it is just like someone constantly tapping me on the back. sometimes it is real light some times the tapping is more like pounding.
thanks to all again
johng
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Ask and it will be given to you Matthew 7:7
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Dyno
Journeyman
Reged: 03/23/04
Posts: 89
Loc: Washington
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johng,
I am so glad you finally received some relief.
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Wishing all pain free days D.
Edited by Dyno (05/13/04 02:47 PM)
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