moonzok
Newbie
Reged: 11/05/03
Posts: 34
Loc: New Jersey
|
|
Any suggestion on this topic. All 18 pressure points hurt. My rheum gave me morphine lolipops for really bad days, but if I use them, forget the day, it is wasted. I don't want to be like this. Can anyone give me any non-medicinal options. Thanks.
|
Opie_Yates
Board Addict
Reged: 08/11/03
Posts: 329
Loc: Tejas
|
|
Ummmm....Fentanyl lollipops, perhaps?
--------------------
Better living through the pharmaceutical sciences.
|
lakjaw
Veteran
Reged: 11/22/02
Posts: 545
Loc: Planet Zartran
|
|
Hi, Moonzok~
I certainly can't guarantee the efficacy, but for a couple of years, I took SAM-e, 400 to 800 mg daily, with great relief of many of my FM symptoms (and I certainly have it BAD!). You also take one B-complex vitamin each day, in order for the SAM-e to metabolize properly.
Frankly, I've never found a prescription medication which will relieve the pain, burning, and aching of FM. . . short of general anesthesia or conscious sedation (and I highly recommend the latter, but that's just me!). Of course, no one will allow you to have Fentanyl and Versed to take on an ongoing basis, but it certainly would be nice.
--------------------
When trouble arises and things look bad, there is always one individual who perceives a solution and is willing to take command. Usually,that individual is crazy.
|
Jordan530
WonderWoman
Reged: 11/20/02
Posts: 597
Loc: The Left Coast of Florida
|
|
I just had an appt. with my PM Dr. today and they are going to try nerve blocks on me (I also have fibro) Don't know if that's an option as I can't tell you if it works or not, but I'll post after I have it done.
--------------------
'A balanced diet is a cookie in each hand'
|
CeeBee
Member
Reged: 08/09/03
Posts: 173
Loc: garden state
|
|
Jordan,I hope they work for you, my husband had them for neck pain (sympathetic pain from his back and legs) and unfortunately they did nothing for him.
|
herkinerf
Stranger
Reged: 10/16/03
Posts: 13
|
|
The best bets for FM flares/pain is lots of deep, restorative sleep and as little stress as possible. For more information, here are two sites: Dr. Devin Starlanyl's site, which is, quite possibly, the greatest source for information on FM. Her book is a lifesaver and can be found here: at Amazon and, finally, a page that I wrote in 1997 when first diagnosed with FM. http://www.geocities.com/~heart27/
Hope at least something here helps. I know how bad it can be. Good luck, and feel free to PM me if you need someone to chat with.
|
Jordan530
WonderWoman
Reged: 11/20/02
Posts: 597
Loc: The Left Coast of Florida
|
|
Thanks Ceebee, I hope so too. She told me that it will either work really well, or not at all, so we shall see. I know she did tell me I'll be asleep during the procedure so it must be pretty painful. Not looking forward to that too much.
--------------------
'A balanced diet is a cookie in each hand'
|
lakjaw
Veteran
Reged: 11/22/02
Posts: 545
Loc: Planet Zartran
|
|
Jordan~
Have you considered trying acupuncture? I do know of some FM patients who have benefitted from it, but it always depends upon the individual. Seems like what might work for one, doesn't work for others. . . or *anyone* else!
--------------------
When trouble arises and things look bad, there is always one individual who perceives a solution and is willing to take command. Usually,that individual is crazy.
|
Julz
Member
Reged: 11/17/03
Posts: 189
Loc: NJ Shore
|
|
moonzok (& everyone else who suffers from fibromyalgia)~
I cannot imagine the pain that goes along with this wretched Better if kept off the board disease- my heart goes out to you all.
If you would like to try a natural, holistic way to deal with it, check out Healthwell.com. In the "search" box, type in "fibromyalgia"- there are several articles that relate to fibro; I hope you find a means to deal with your pain.
Best of luck & God's blessings,
Julz
--------------------
Love never fails. 1Cor 13:8
|
Jordan530
WonderWoman
Reged: 11/20/02
Posts: 597
Loc: The Left Coast of Florida
|
|
Hey Lakjaw, my PM Dr. called yesterday and I will now spend the next 4 Mondays starting in Dec. getting the nerve blocks. So, that means nothing to eat or drink after midnight 4 Sunday nights in a row and that includes my pain meds too she said. Anyway, if this doesn't work, I will we willing to try anything (as long as my insurance will pay for it  ) So, I'll keep the acupuncture in mind and thanks for the suggestion. I've also read that it's helped quite a few people.
--------------------
'A balanced diet is a cookie in each hand'
|
Sky_Queen
Fly Girl
Reged: 12/03/02
Posts: 1950
Loc: Texas
|
|
Well, here I am coming out of my sabbatical again to send my best wishes to Jordan and her upcoming treatment, I hope it works for you! Pray for the best, expect the worst is my motto
herkinerf - I followed the links in your post above, your writing is hysterical. Fibro people, check out her writing on fibro, it will bring a smile to your face (some good info too!)
|
lakjaw
Veteran
Reged: 11/22/02
Posts: 545
Loc: Planet Zartran
|
|
Hi, Jordan~
Wishing you all the good luck in the world. I sincerely hope the injections help.
I'm currently waiting to hear from my doctor or his nurse or *someone* because I started bleeding internally again last night, and spent several hours on the loo. Crohn's has flared up, and the FM isn't far behind. *whine*whine*!
--------------------
When trouble arises and things look bad, there is always one individual who perceives a solution and is willing to take command. Usually,that individual is crazy.
|
night_shade
Threadhead
Reged: 08/26/03
Posts: 907
Loc: The State of Hockey
|
|
Can anyone explain how fibro is diagnosed? I looked at a list of the symptoms, and have to say they are so vague that a million different other problems could be the cause. How is it doctors decide it IS firbo and not something else?
My brother's girlfriend has this and I would like greater understanding of the disease.
Thanks in advance.
--------------------
Never underestimate the predictability of stupidity.
|
lakjaw
Veteran
Reged: 11/22/02
Posts: 545
Loc: Planet Zartran
|
|
Basically, one is usually sent to a rheumatologist, and s/he might order blood work for rheumatoid arthritis and lupus. If both return negative, the doc then tests for the sore points. There are points which are fairly specific, and are bilateral. If you go to Google and look up a couple of the initial sites, they should have a body outline with the spots marked. I have far more sore points than are listed there.
--------------------
When trouble arises and things look bad, there is always one individual who perceives a solution and is willing to take command. Usually,that individual is crazy.
|
Jordan530
WonderWoman
Reged: 11/20/02
Posts: 597
Loc: The Left Coast of Florida
|
|
Oh Lakjaw, so sorry to hear that. Take care of yourself and I hope everything is okay. You can't be sick on Thanksgiving!
Keep us posted,'k?
--------------------
'A balanced diet is a cookie in each hand'
|
lakjaw
Veteran
Reged: 11/22/02
Posts: 545
Loc: Planet Zartran
|
|
Hi, Jordan~
'fraid I'm going to be sick on Thanksgiving, after all. No call back from the doctor, so it looks like I'll be going to the ER if things get worse. . . as usual.
Hope everyone has a lovely, relatively pain-free (at least!) Thanksgiving day.
--------------------
When trouble arises and things look bad, there is always one individual who perceives a solution and is willing to take command. Usually,that individual is crazy.
|
Previous 
Index
Next 
Threaded
fibromyalgia 
Edit 
Reply 
Quote 
Re: fibromyalgia