Corrie, I am sorry to read about your diagnosis. My best advice (which you didn't ask for), is to find a specialist.
If your doc can't offer you much info on this, he/she may be able to suggest a reputable specialist who can help you through the pain until the medication works and one who will understand and be able to explain the disease in a comprehensive manner.
My dad's urologist is quick to help him with kidney stone attacks...assisting him with pain control as he tries to pass them at home. He is very compassionate, whereas dad's PCP wants nothing to do with it.
I hope you find relief soon. Ruling out cancer may seem expensive, but it may save your life.

Good Luck!