I've just been diagnosed with this supposed, auto-immune disease. It effects the bladder/urethra and intense pelvic pain is one of the symptoms.

I had my urethra stretched when I was 13 due to recurrent bladder infections, and was also in the ER 3 times 10 years ago with severe bladder infections (bleeding). I've been using OP's for herniated disks, but the pelvic pain I've been experiencing lately is worse than that of my back. I really feel like I have too many complaints, and so I've resisted going to the Urologist for this condition because 1) our insurance majorly SUCKS and we can't afford the deductable 2) I believe my family already thinks I have too many physical problems and that I'm a constant source of complaints.

I couldn't stand the urgency, pelvic pain, burning, etc. anymore and finally decided to see my OB/GYN, the only doctor I truly trust and he was able to diagnose this. It's a chronic disease, and Elmiron is one drug used to treat this disorder, but relief won't be found until 2-4 months which is unacceptable. I already take up to 5-6 Lortab's daily (I know I'm going over my 4 per day limit, but the added pain is a contributing factor) and use Ultram and Buprenorphine (which I'm finding is not so great of a painkiller, but a good drug to use if you want to quit taking hydro) on the days I don't use hydro.

I'm not sure how to go about finding an approach to treat this condition. I've already been searching on Google, and there are a few Interstitial Cystitis organizations which I may contact, as my doctor didn't have much in the way to offer in regard to information. There are therapies such as Bladder Distention and Bladder Instillation and surgery as a last resort, and they now are wanting to do a bladder biopsy to rule out anything more serious.

I do feel very thankful at this point that I at least have Ultram for the pain (which I'm now taking until my refill of Lortab's arrive on Monday from Woody's), and have a doctor's appt. next week, but I wanted to see if anyone has any information on Interstitial Cystitis (personal or otherwise). I've had problems off and on like I said since I was 13, but my main concern for the past several years has been my herniated disks, now this comes along and the pain seems to be too much. I hate this because standing for any length of time is incredibly uncomfortable, and this limits me in what I can do in regard to making dinner, cleaning, etc. It seems as if no one really quite understands. I've tried to do the right things like work out regularly, not drink alcohol or smoke and eat healthy and drink LOTS of water (no soda), but don't know if there is a particular diet I should follow that could be of any help in the meantime.

Any help would be much appreciated if you know anything about this condition. Thanks.

Corrie